Just before we left the hospital yesterday, Emmett and I saw the community liaison nurse who met us after our first surgery. It made me think of how much has happenned since then and how we have changed our outlook since then. E has been with us now for a little more than 6 months, longer than he lived in the orphanage. Since he came home with us he has had 4 separate surgeries which add up to a little less than a month of hospitalization.
He will still need one more surgery on his privates, but the one just accomplished should help keep him from getting another bladder/kidney infection. With that said, it seems like most of his physical issues are settling down, which brings us to the developmental stuff.
We still have no news on the genetic testing front. The developmental pediatrician is not pleased with his developmental changes. Here is a rundown of what he has learned in the last 6 months:
Roll over (in one direction he only goes halfway and back)
Put his hands together
Make eye contact
Laughs and smiles
He’s working on sitting, slowly but surely. That’s going to take a setback with this surgery, but I think it will happen eventually. We still have hope that he won’t be stuck as a 6 month old baby for the rest of his life, but it is always in the back of our minds because he has developed so little. I have decided that I am not going to base my future happiness on whether or not he achieves this or that developmental milestone. I still have hopes and dreams for Emmett, just like I do for all my boys, but I feel like my realistic expectation has gone way down.
Which brings me to this. He is a much happier baby since he got his PEG tube put in. He seems to have a better time with his brothers and enjoys being in public. Hopefully he gets to the point of being able to communicate with us at some point, but for now, a smile is very nice.