ok, so now the surgery is scheduled for Tuesday morning. The hospital has assurred us that it WILL HAPPEN TOMORROW. So I’m guessing God has given us this extra day to get more people to pray for Emmett. Please pass this request on!
So our new plan is to leave here super early on the first train to London tomorrow, since they don’t have a hotel room for us tonight. I think this might work out better than us going to London tonight – all of us should sleep better at home, and we have all of Emmett’s feeding stuff here, so we don’t have to worry about having forgotten anything.
However, a new complication was introduced into this whole shebang today, when our base’s referral management office called to inform us that they had just been called by Great Ormond St Children’s Hospital in London to inform them that Emmett would be having the surgery Tuesday. I said yes, that was my understanding. The lady then informed us that we had not been authorized to go down there, we had only been authorized to see Dr. Kelsall (inverted commas guy) at Addenbrookes in Cambridge. I told her we had been also seeing Dr. Yates (the cardiologist in charge of Emmett’s case at Great Ormond St) during their joint clinics since October, and that ALL pediatric heart surgeries take place in London, because Addenbrookes doesn’t have the staff or equipment to do heart surgery on kids.
She then semi-yelled at me for not coming in and filling out these referral forms, and I sort of semi-yelled at her that we thought that had all been taken care of (we were approved for his cardiology referral in September), and that our pediatrician at the base was totally up to date on what was going on with Emmett’s case, and nobody has told us we needed to fill out more forms for each of the million doctors he sees. There was a lot of semi-yelling on both sides.
And OMGosh, this situation had better get worked out today, because, come hell or high water, that boy is having that heart surgery tomorrow. And I do not want to see a 50,000 pound bill for it 2 months down the road, which is exactly what happened with the intestinal surgery (although that bill was only 9000 pounds, a real deal for 2 weeks hospitalization, including 5 days in the PICU, and major intestinal surgery). No one at the base asked for authorization to transfer us to Addenbrookes for the surgery (although they transported us from the base over there in a frappin ambulance, for crying out loud), so tricare just wasn’t planning on paying the bill.
Can you see that I’m a little frustrated with this whole situation? Good, I’m glad that’s clear.
So while you’re praying for Emmett, please pray that tricare (military insurance) will actually approve for him to have this surgery before it happens.