Sorry I’m a bit behind the ball here, but we are finally home! We were released from the hospital in Cambridge on Tuesday night, and we’ve spent the last several days trying to get adjusted to being home again. Mike went into work on Wednesday, brought his mom to the airport on Thursday, and went to work today…so Emmett and I are getting plenty of time together to try to figure things out. Especially because our “good” car is still in the shop 🙂 .
Life at home with the NG tube is …interesting. He hasn’t yanked it out yet, but of course we’re having some issues with it that never came up in the hospital. That, along with just logistically figuring out all the supplies and medications that are needed with each feed, makes feeding time an adventure. Needless to say, I am so not ready to take the Emmett show on the road yet. At the same time, however, I am going stir crazy here at the house. My activities now consist of taking O to school, entertaining Y, taking care of Emmett, and…nothing else. Of course, next week the doctor’s appointments start back up again, so that’ll add some spice.
Wow, that makes my life sound pretty pathetic. And while I am super frustrated to have my life whittled down to the bare bones, how ungrateful am I? We are so thankful not to be in the hospital anymore. We are so so thankful that so far, he hasn’t had any complications from the surgery. I am incrediably thankful that he made it through the surgery!
While we weren’t expecting this to be our life, God has been so good to us. He has answered many of our prayers concerning Emmett. We are still praying for more healing, both physically and developmentally, but God has been faithful every step of the way.
Thank you so much for all the prayers that have been said by you, your friends, your family members. They have made a difference, I promise.
And at some point I’m going to get back to writing about other stuff besides all the issues surrounding Emmett. In particular, I have questions. Questions about what to do about a 2 year old who is the sweetest boy in the world when he’s happy, but becomes a giant pain in the patootie when the world isn’t going his way. A certain two year old that today, upon learning that I would not be taking him outside to play in lieu of his nap, proceeded to VERY PURPOSEFULLY dump a can of V8 juice all over the floor.
Never a dull moment.