Hey everyone. We had a good night in the hospital last night. At 10 he took a whole 3 oz bottle, and then at 1 he took 2 oz. So he still knows how to swallow, he just doesn’t like to do it. I think we may have a long row to hoe, but I dared to think that maybe he will get better.
I was thinking last night that while Lauren and I are not exactly fearful of the future, we have lowered our expectations as a way of protecting our hearts and faith if he does turn out to have long term issues. I know that God is a God of hope, but it is so hard when we have so few tangible improvements. My mom said yesterday that he looked much healthier than when she saw him on last Saturday, but from our perspective he is pretty much the same as then except now he has a 3 inch scar on his stomach and we have to keep an eye out for adhesions instead of malrotation. How do you encourage hope in a way that grows faith? This is relatively new territory for me so I would appreciate any advice.