Well, E is done with his first surgery and we are now in the ICU. He is on some morphine for the pain, which makes it a little more tolerable. First things first.
The surgery went pretty well. We had to wait an extra 4 hours to get started because the surgery before ours had some complications that made it run long. E was happy as a clam going into the surgery room. Obviously he had no idea what he was getting into. The whole thing took about 3 1/2 hours and they did several things. First, they looked at his intestines, found the malrotation they thought was there, and rearranged them back in the right place. Apparently the doudenum was all jumbled up, so it is good that the doctors decided that surgery was the way to go. While they were doing this they took out his appendix, so nobody will be confused on whether he is having appendicitis or complications due to the surgery later on down the line. So he has a 4 inch lateral incision on his stomach above his belly button.
After they got done with that part, the surgeons used an endoscope to look down his throat and stomach with the intention on putting a g-tube in. However, his stomach was smaller than normal, increasing the risk of placing the tube, plus they didn’t see any evidence of reflux or other problems on that end, so they were debating whether to even put in the tube because they thought the feeding problems could possibly be caused by his intestines causing his stomach to empty slowly. While they were talking about that, there was a “blip” in the anesthesia (I’m not sure what that means exactly), so they decided to just finish up and wake him up. Apparently the “blip” was not serious, so that’s good.
So after the surgery he came up to the PICU where Ren and I have been keeping him company. When his morphine wears off he wakes up in a lot of pain but he is asleep now. They are going to have to put in another IV line because he just blew one in his right hand. It was swollen pretty badly before Ren noticed it and the nurse was a little freaked out, but the Dr here said it would be fine and it returned to pink within a few minutes after they took off all the stuff. Still, one more thing that E is dealing with.
Hopefully we can go back to the regular Peds ward tomorrow, where we will probably stay for a week or so. Since we don’t have the G tube in, we’ll have to use the one through his nose for now. I think they would send us home like that, but hopefully E’s finds his appetite so we can avoid any more unpleasantness.
Thanks so much to everybody for your prayers and thoughtful posts, emails, and phone calls. Praise God for giving the surgical team the skill and wisdom to fix our boy’s tummy. We will try to keep you posted as we continue on with our adventures.
EDITED TO ADD: Hey, ren here…I just also wanted to say thank you thank you thank you so much to everyone who has been praying for Emmett. And to ask you to continue to pray – the surgeon had to do a lot of repair work in his abdomen, and the more he did, the higher the risk for adhesions becomes. About the same risk of forming adhesions after a raging appendicitis, the doc told us. So please, please don’t stop praying – the next couple of weeks will be crucial. And please pray especially the next few days, as he is not out of the woods in terms of how his heart will react to this surgery – as the anesthesiologist explained it to me, he’ll be having fluid shifts in his body as a result of the surgery, putting further strain on his heart.
But laying the negativity aside, I am so grateful to God for getting Emmett to this point. This morning both the anesthesiologist and the surgeon were telling me they didn’t want to do this surgery because it was such a risk due to his heart, but that they had to do it. I consider it a miracle that he made it through today. I also consider it a miracle that Mike and I made it through the day 🙂 . Now we ask the Lord to continue blessing this child.